Being Told to Give Up

If you follow me on Twitter you’ve learned that I found a new pain management doctor. Not because my previous one was horrid (I know you can read a lot of horror stories on various blogs) but because our vision was going in different directions. So, I found a new doctor and he’s great. My first time seeing him where he evaluated me, he had this great idea for an intrathecal pump. Now, for of those of you who do not know what this is, it’s a pump that is implanted into the flesh of your belly and where the thin, catheter tubing goes up into your spinal cord and the medicine would go directly into your spine. This eliminates the medicine having to detour into the liver, and with the medicine going directly into your spine, it also allows them to give you much lower doses of medicines like morphine, to help with the pain. This all sounded pretty good to me, minus the pump implant and catheter tubing that has to go into the spine, but the theory behind it was great. Better meds and bypassing the liver. Cool. I scheduled a trial, where they deliver the pain medicine to the spine via spinal tap to see if it will help. But I had to be cleared by a few doctors, one of which was my neurologist who hit the brakes hard. So much so that I had a head-on collision with this great idea. He would not discuss it without actually seeing me so I made an appointment and sat down to talk about things.

It began with the fact I had a seizure in January, and because he is a neurologist he knows exactly what the intrathecal pump is and how they would do it and because we have no idea why I have these seizures (undefined seizure disorder), he is afraid that I might have a catastrophic seizure during the procedure and end up in bad shape in the hospital. Okay, I thought. Do I have to wait a few months to be seizure free? What if I wait and everything is fine and schedule it and have another seizure before the procedure date? I’m pretty sure he could see the questions racing in my head by the expression on my face and that is when he stopped me cold.

“I don’t think you should have it done at all. I think you have to accept you are going to be in some amount of pain, and possibly significant pain, for the rest of your life.”

Let me say that he’s been treating me for a long time. He can be abrasive and won’t shy away from telling you he’s an asshole, but he’s the farthest thing from an asshole. What he is, is honest but sometimes honesty is not something you want to hear as much as a version of honesty that offers some hope. There was no hope in his statement and I cried with the impact it made on me. There was nowhere to turn, nowhere to hide. All I could think was:

“But why?”

He gave me a lot of reasons. The seizures. The fact I’ve had several failed back procedures. The fact I’ve tried many things already, to help with the pain that has not improved my situation. Finally, what he feels is the biggest reason: I’m Bipolar. Why is this the biggest reason and why should it matter that I am bipolar or not? I didn’t understand even after he explained it until I began to research it. Me, the person with bipolar, had to research why her bipolar was the biggest reason to give up. Why was my mental illness the sudden obstacle between me and the Holy Grail of cures?

The theory is that there is a link between chronic pain and bipolar, one which worsens chronic pain and symptoms of bipolar over time. The idea is that psychological pain comes with depression and that depression worsens chronic pain. One big vicious cycle. In learning about bipolar you understand that physical pain is often an underlying symptom of anxiety or depression. For example: “Muscle aches, chest pain, gastrointestinal cramping and other types of pain can be symptoms of bipolar disorder. They can also coincide with bouts of extreme fatigue. Aside from the emotional trauma of depression, these symptoms can only add to the burden, especially since they may not go away with traditional pain treatment methods.” [https://blogs.psychcentral.com/bipolar-laid-bare/2016/09/bipolar-disorder-is-linked-to-chronic-pain/] As I read, I was kind of blown away. It suddenly hit me that maybe bipolar and chronic illness were a tandem unit in which the one (bipolar) made the other (chronic illness/pain) more difficult to treat and perhaps, vice-versa.

It’s been almost two weeks since that appointment and it feels like I’ve spent all of it ruminating on his dispiriting words. My mood has been terrible. I’ve been at turns, bitchy and emotional and picked a fight with my husband for no reason. When I apologized to him and we talked about it, I explained to him all of what I was thinking and blamed it on my bipolar. He shook his head and simply told me:

“You’re upset because he took away your hope.”

This shouldn’t have been such illumination to me but it was. While I understood everything that my doctor told me and everything the research, I had read concluded, does it give someone else, like a doctor, the right to single-handedly, extinguish the possibility of hope? Not for me, although I understand his intent and I don’t think it was maliciously done. The problem lies in the nature of chronic illness and chronic pain and how it affects the psyche of the individual suffering. It diminishes hope. The physical deterioration can be slow for some people, where things that we could do are slowly taken away one-by-one, while for other people it can feel as though you went to bed healthy and woke up in such debilitating pain that you can no longer walk, but the hope that ebbs away is real no matter which side of the spectrum you are on and I believe we need every shred of it.

I understand that this intrathecal pump may not be the best option for me. In my personal case, with seizures of an undefined origin, it may be too risky. I’ll even extend this understanding to the bipolar disorder, but only because I understand on an intellectual level that it may have a hand in my pain. However, as to what role it may play in this drama, among which all these comorbities of mine play? The jury is still out until I see some very thorough studies. I can see that on one hand it may unlock many mysteries pertaining to chronic pain and illness, but on the other I am afraid it may de-legitimize the pain and illness of many who suffer if we simply chalk it up to the by-products of mental illness. My final thought here, which was the purpose of this post to begin with, is that I don’t believe it is right for anyone to take away the hope of a chronic illness/pain patient. Hope is one of the few things we have left. It is sometimes the only thing that keeps us going. If you are a doctor out there, reading this, please, protect your patient from un-needed or dangerous surgeries, but do not take their hope away.

Advertisements

The UN-Glamor of Anxiety

Are you looking at UN-glamor and wondering why? Does it bother you from a purely grammatical perspective or is it causing you to pace and pull out your hair, possibly making you twitch?

Anxiety can range from mild to severe, some people function very well with it and others don’t, but the interesting thing about it is that we’ve all experienced it. It may have manifested in the anxiety we often feel as children when we are first separated from our parents or before texts. These are things that are common to feel anxious about. But anxiety can quickly become a problem which is all-encompassing and one that can make day-to-day life, difficult. Anxiety before a test, that causes the individual to vomit repeatedly, is not average anxiety. The anxiety that comes over you like a dark cloud and makes you feel as though there is some great, threatening danger and prevents you from going to work (which I have felt), is not average anxiety.

Anxiety can also be a by-product of other things like chronic illness or OCD (Obsessive Compulsive Disorder).  Why you might ask, would chronic illness spawn something like anxiety? In my personal experience with it, because of the unpredictability of my symptoms, never knowing how I would feel from day to day and the possibility of needing to call off work sick and lose my job, made me incredibly anxious. In dealing with OCD (Obsessive Compulsive Disorder), there was the anxiety brought on by shame.  It was being cognitively aware that my feelings were irrational but unable to stop feeling it. It was being afraid to go in public and carry on with my normal activities because I was afraid of having a panic attack brought on by my anxiety of certain situations. It was anxiety brought on by just attempting to carry on normally, and knowing that my attempt at illusion was failing and shattering beneath the weight of it all.

The-Side-Effects-Of-Anxiety

What angers me most about the perception of anxiety is that it’s somehow this adorable little quirk in women, which women use as some kind of sonar device to attract potential mates. Because of course, women need saving, whether it’s from the “bad things” outside, or ourselves. Pardon me while I eyeroll a moment. None of my anxiety, panic disorder, bipolar or OCD ever helped in the guy department. In fact, I actually attribute it to the disaster of my first marriage, which other than producing two, beautiful children, was toxic in all ways. It’s difficult to find someone who can see past the messy of mental illness and find you, under it all. I felt broken. I felt very UN-glamorous and not at all cute.

Although my focus here is women, I wanted to comment on our male counterpart. I think that because anxiety and mental heal issues are romanticized with women that it is actually the reverse for men. If we think about our society for a moment, and how men are the tall, strong, handsome ones who do the rescuing, that this idea puts men who are struggling with anxiety and mental illness in quite the conundrum. Not having any statistics handy, I would wager that many men try to cover up their anxieties much more than women, trying to appear normal and trying to have relationships. I can imagine the difficulties that this brings them and the sheer exhaustion of trying to keep up with this illusion, before they, too, shatter.

I still struggle with anxiety. Going out into stores is possible but I still wouldn’t ever step foot into the grocery store on weekends. I can’t recall the last time I was physically at the mall. I am unlikely to ever do any of the brochure-highlighted tourist attractions, and will instead opt for something more rural, less popular. My education has been something of an odyssey, I am painfully aware of my test anxiety and as equally aware of my social anxiety. My OCD is better than it was, but I freak out a little when we have to divert from a familiar route to any place we go. This can include heated arguments and tears. The bipolar is a different breed of the monster of mental illness but I am in a good place. Some days it’s harder than others. I do not view my life with my anxieties or mental health issues as glamorous, nor do I think you would. It’s been a rough, ugly road to get to the place I am now. If you are in that rough place, I would ask you to get help and stick to it. If you know someone in that place, don’t give up on them and keep trying to push them closer to help. If you don’t have these issues, I would tell you not to fall for the glamour of how they try to sell it in the movies or T.V. because it’s not anywhere close to that. Lastly, I’d ask everyone to advocate for positive mental health discourse. It shouldn’t be something anyone is ashamed of and being educated about it may mean you get help for yourself or someone else sooner.  

 

*The image is me and I used Photolab.

If you like what you are reading:

https://lovekarmafood.com/blog/
Please donate ❤
https://www.paypal.com/cgi-bin/webscr?cmd=_s-xclick&hosted_button_id=4MYYJHXFMTGZN

Chronic

Chronic mental illness defined: A mental disorder, also called a mental illness or psychiatric disorder, is a diagnosis by a mental health professional of a behavioral or mental pattern that may cause suffering or poor ability to function in life. Such features may be persistent, relapsing and remitting, or occur as a single episode. [https://en.wikipedia.org/wiki/Mental_disorder]

 

It is difficult for many people to wrap their heads around mental illness as a chronic condition. There is this idea that if you are a good patient, taking their medicine as prescribed by your doctor that you will be cured and return to normal. As a person who struggles with chronic mental illness, I can tell you that this is not the case. As the term chronic implies, this is long-term, which means the rest of your life. Medication can help with symptoms and truly be life changing, but there is no escape. You may even be perfectly well-managed for 30 years, however, whatever form your chronic mental illness takes, it will be with you forever and that means for some, every day is a constant battle with symptoms. What I like about this definition is that it points out this can be relapsing and remitting or occur as a single episode. There is no one-size-fits-all when it comes to mental illness. Each person experiences it in their own, in a very intimate way. Here are some things to know if you have Chronic Mental Illness.

 

  • You will grieve after diagnosis: I find that mental illness takes up this grey space, that chronic illness also shares, where you don’t have a cure, but you are not going to die and you may even look good enough to pass for healed, but you aren’t. All it takes it that one trigger to breathe life into something that might have been dormant for years, or not even a trigger, but just a shift in moods that is enough to pull you under. You are going to grieve life as you knew it, being gone. You are going to grieve a life of simplicity, where you didn’t have to take meds and your moods made sense. But you will make adjustments and you will find a way to live with your mental illness.

 

  • Your mental health is not just about you: This is something not everyone agrees with and I am by no means speaking as an expert, but only personally. As always you must follow the instruction of the doctor whose care you are under. However, for me, my mental health wellness was important to many lives around me who I touched. My husband, my children, and my parents, as well as my near family which would include my brother and sister in-law and mother and father in-law. This meant that finding a place where I could take care of myself, and my children and be in a good place and not wanting to hurt myself was immensely important. It meant that for a while, I took my medicine religiously and sacrificed much of my own freedom of thought towards how these meds made me feel until I could make needed changes with the guidance and support of my family. I found a new doctor who was able to stabilize my behavior with less medicine and I won my creativity back. We have to be there for those who love us and depend on us. We also have to advocate for our best mental health and if that means seeking a new doctor you must.

 

  • Medicine is not a fix-all: It took a few years of living in a fog of medicine, where days and weeks passed in a blur in which I was not participating in life that two things happened: I found a new doctor and I researched other ways in which I could help to regulate my mood. I discovered meditation and I re-discovered writing. These have both been integral to my healing as well as something that I can do when I feel my mood slipping. Since then, I’ve also learned how to practice Mindfulness. It’s not hard and it doesn’t take that long. But for me, it is the anchor that I need when my seas begin to churn. Mental illness never leaves us. It is this constant and sometimes sinister under-current through-out our lives, but we can manage it in combination with medicine and many other ways that can help us live in peace.

 

  • Educate yourself and educate those closest to you about your mental illness: Everyone has their own perception about mental illness. Even you may have had your own ideas of mental illness until it touched your life. Sadly, there is still not enough candid conversations about mental illness and while there is better understandings, we need to open up about this so that children and teens and young adults can come to us and talk to us about what they are feeling, without feeling like there is something broken about them. You need to educate yourself and your friends and family so that they can begin to comprehend what you are going through and be there to support you. It is vitally important to your continued and long-term well-being, that you have people around you who will be able to see when you might be slipping, when you can’t see it yourself.

 

  • Don’t stop your medication without doctor supervision: I feel that this inclination to want to stop medication is partly to do with our societal taboo in regards to mental illness and partly because we don’t want to feel like we are dependent upon this medication. It makes us feel like we are not being our authentic self if we have to rely on medication to be “normal.” But the medication is actually helping us to be our authentic self, where-as our mental illness, is the deception. More importantly, suddenly stopping your medication could send your entire body into tilt. Anti-psychotics can often leave you with nausea and feelings like you are in withdrawal. You might catapult yourself into insomnia on top of shifting your mood. When I told my psychiatrist, I wanted to go off medications for a while, with his supervision and continuing my monthly visits, he supported me. His support also hinged on my finding other ways to manage my moods, as I mentioned above.

 

  • Don’t fight this battle alone: You need a support network. You need people you can trust, who will be there for you when you need them and who will advocate for your health, when you cannot. If you do not have someone who can advocate on your behalf, I would suggest making your doctor fully aware of what it is you want, in terms of medication should your current ones fail. I would also keep a medical directive, an advance healthcare directive, also known as living will, personal directive, advance directive, medical directive or advance decision, which is a legal document in which a person specifies what actions should be taken for their health if they are no longer able to make decisions for themselves because of illness or incapacity. [https://en.wikipedia.org/wiki/Advance_healthcare_directive]

 

This isn’t just about a DNR, but making sure that your doctor is aware of what you want should you be incapable of telling him. Even if you have family and support, it’s always a good idea to keep this and make them aware of it so that emotion doesn’t cloud what it is you want. It may seem extreme, but when I spent time in a mental health facility, there was a patient whose family was extremely distraught with her decision to undergo electroconvulsive therapy (ECT), and who attempted to stop the facility from doing it, citing that she was ‘not in her right mind’ but her advance medical directive made it impossible for them to stop it.

 

 

As always, thank you for reading and supporting my blog. Please share if you know someone with chronic mental illness who might benefit from it. Or share it with their friends and family.

For Those Who Are Imperfect and Still Struggling: You Are My Heroes

In a land of inspirational TED talk speakers, those who’ve gone through the chaos of mental illness and come out the other side as motivational speakers, do you find yourself still struggling in your 40s and trying to keep it together? You aren’t alone.

I’m not bashing those TED talks either. I applaud each and every speaker who stands up there to motivate and inspire the masses. It’s amazing and I listen often. What I am saying is that sometimes, for a lot of us who are still struggling, it’s okay. I’m not saying that every speaker has their lives in complete order either, but there are times when I listen and it feels like an auditory version of Face Book or Instagram. It’s their filtered, selfie-version. Sometimes, I want to hear someone up there saying that life is fucked up and they don’t have it together and every day is a struggle but they are managing. They are managing day-to-day and hour-to-hour and it’s okay. Because those people- they’re my heroes too.

As I brain-stormed about this idea I reflected on my own posts through-out my blog as well as other writings I have done for other sites. I wondered if I appear the same way that some of those TED talk speakers do to me. Flawless? Put-together? Was I only allowing my readers to see a fraction of what is my challenging life? The answer, I think, is a complicated one and maybe a complicated one for a TED speaker too.

Whether it’s a PodCast, or TED Talk, or a Blog post; Instagram or Twitter Post, the audience is never getting the full picture. They don’t see us 24/7 (thank goodness!) and so there is never going to be a complete image. I believe the whole point of TED talks are inspirational speakers. I know my blog is meant to be uplifting and while I have received comments from readers who’ve called me inspirational, I didn’t set out to be and I certainly don’t feel it from day to day. I am just a girl who is trying to get by, from one day to the next, successfully. There’s a lot that goes into that.

My purpose in this slightly rambling post is this: It’s not all sunshine and rainbows for anyone. Don’t let anything you see, hear or read make you feel badly about yourself. Don’t sit there and compare yourself to someone who maybe had similar things going on and wonder why you haven’t made it out to the other side of that dark tunnel. Your circumstances are never the same as someone else and so you shouldn’t add anymore pressure or grief into your life. I know it’s not easy. Here I am all judgy on TED talk speakers like they set out to shame us when what they are doing is quite the opposite. But I think it is very easy for us to see only part of the story and maybe that is human nature.

As I said right from the start, you aren’t alone. I am no where close to living an idyllic life. I have not yet reached enlightenment! Each day is a renewed effort to make it through, what is, a very challenging life. Like you, I have many imperfections and flaws, some of which I was simply born with, like my mental illness and health issues. Others, are of my own doing, like my brooding, or my inability to say no even when I should. I have external challenges like you too. These are things like my children, who while adults (in varying stages), and still living at home, continue to test my parenting skills as I navigate from being parent-to-child, to advisor-to-adult, while always remaining that loving Mom to them. It’s tough. I have bad days, just like you do and sometimes…I fail miserably. But when I do fail, I try very hard to learn from that situation so that I do it differently the next.

One of the things I don’t talk about as much as my chronic illness and pain, are the mental health struggles. I think it’s easy to forget when it’s not brought up, or when we hear an inspirational talk about how they put their lives back together, that the mental illness is still there. It didn’t go on vacation, or disappear and it certainly hasn’t been cured. What has changed is how the person has learned to deal with it, recognize symptoms and use tools that they have learned to cope with it. Don’t be sucked into some false idea that because they are up there talking about it, almost as if it is in the past, that it is in the past. The only thing in the past is the chaos that was because they didn’t know how to deal with it. That is what changed. I deal with my bipolar every day. I live with my anxiety and OCD and PTSD every day. I haven’t quite gotten to that place where I cope with it and know how to deal with it. Some days aren’t great and I forgive myself for that and go on. Each day gives me the opportunity to learn how to deal with my mental illness and that is all I can ask for. A new day.

What I Hide

(from my friends and family)

About My Anxiety

Though any group gathering can make me worse, what stands out right now is the holidays. That time of year when people have parties, families get together and the stores become a treacherous gauntlet. There are some people who thrive during this insane season, while others, like me, need to ready the mithril armor in preparation.

In my head, I know it shouldn’t be so difficult. Unfortunately, the rest of my body doesn’t seem to be aware of that; they didn’t get the memo, I will have to send a stern letter to management. Oh, wait! That’s me. At any rate, the moment I find out there’s some kind of gathering I have to attend, friends or family, the panic sets in and there’s an incredible amount of mental prep involved. This is partly because I’m ashamed of my anxiety and partly because I feel guilty for it.

1.)  Mental Prep

Here’s how a typical mental prep goes:

“Alright, Liza. Auntie and Uncle are flying in. Mom’s having a bbq and you need to look decent. Enough to pass Mom’s critical eye and enough that I won’t provoke any questions about my mental health. I also have to make sure I fly under the radar of Auntie and Uncle, which I am never certain I do, but they’re always good about not saying anything.” The scenarios will change, but it’s always the same basic idea. I want to appear as normal as everyone else. But I also want people to see that I do have limitations, but that I am still me. I’m a girl. I’m complicated! The mental prep, all humor aside, can be exhausting in itself.

2.)  OCD Worrying

I fret for weeks what I am going to wear. And that is if I know way in advance. If I don’t and it’s something sudden, where I didn’t have time to play, it’s worse. Even when I finally decide on something, I’m not happy. Too tight, too hot, too frumpy, or the always popular, I look fat. Anything to criticize myself and my choice. But no one, aside from my darling Mister, will know how much I worried over everything.

3.)  Gearing up for Conversations

This sounds benign right? I assure you that it is far from it. It’s basically three parts. The first, questions about my health. The second, what I plan on doing with my life. The third, casual, random conversations that should be easy but because I am hyperventilating about one and two, it never is. And, it’s always worse when I don’t know the people I’m around. Alright, so the first question about my health always stumps me. Do I answer honestly? Or will this provoke to much pity? Do I lie and possibly elicit the opposite response which is anything between apathy and skepticism? You might think this is harsh, but t is universally known that someone trying to acquire disability shouldn’t be happy, shouldn’t enjoy anything and definitely shouldn’t laugh. Let’s slide into home with the last, my life’s work- which couldn’t possibly be writing because I don’t get paid for it. Basically, this is just some glorified hobby of mine too keep me busy while I wait for disability. This is truly my least favorite topic of conversation because there is no winning. I could tell them I was being featured in Time or that I was Oprah’s newest favorite thing, and the reaction would still be, “That’s nice dear. When are they going to pay you?” Finally, I don’t do small talk very well. I hate, hate, hate, having to do small talk with someone I do not know. I have no problem sitting in silence and staring at them uncomfortably until they leave.

4.)  Can You Bring Something?

I am lucky that I do not typically host any event at my house. We’re far too small a space for the six people already occupying it so there’s little reason to torture everyone else too. But it usually means I have to bring food and while I don’t mind, I often worry about what to bring. Thinking about it as I write it, I am cognizant of the ridiculousness of this worry and what I put myself through, but it is what I do. I worry about the dish pleasing everyone even though I consider it divine intervention of some kind when I please every palate in my own house. I worry that if it is too simplistic of a dish it won’t be pleasing enough and yet, if I make anything too complex, I know that I will need help or that I will end up exhausted.

5.)  The Anxiety Over Having Anxiety

Finally, and I made this the last thought not because it’s the least of my anxieties, but because I want it to linger in your thoughts.

It’s hard for people who do not understand anxiety to comprehend all the stressors we go through, sometimes just getting out of the house. Yes, just to get out of the house. I’m now sharing a little-known fact about me that not even the Mister knows. On bad days, I can’t leave my house. When I used to work, to compound my misery and guilt over missed days because I was sick, there were days I just couldn’t leave my house because my anxiety was so bad. And, what is worse, is that logically I get it. I’m willing to bet we all do on some level. Stepping out of the house won’t kill me, but my body and the racing heart and the inability to breathe and sickness and nausea I feel, tell a whole different story to my brain. I’ve tried to leave my house and gotten as far as my car, locking the doors as I sit inside and hyperventilate myself into feeling that impending doom. I don’t want to feel like that and I just jack up the anxiety and stress even more when I try to logic my way out of it. I wish there was a way I could be free of it and maybe I will find it one day, but until then, remember that we don’t want this. Remember that before you make fun of someone for being anxious or diminish what they are feeling by trying to rationalize it for them, as though they didn’t already try. Saying things like, “It’s all in your head.” I may know that. I may know it in every cell of my body, but when my heart is pounding and I’m struggling for every breath and the tears are rolling, I just don’t give a fuck. I just want you to hold me.

Escaping and Surviving Domestic Abuse

*Trigger Warning*

In December of 1997 I made the decision to leave my husband. This decision came after four-years of being emotionally and physically abused.  This decision came after repeatedly leaving him and taking our two, young, daughters to live at my parents’ house where ultimately, he would manipulate me enough through apologies and promises, that I would go back. That summer he decided to move us to Alabama, a small town where he still had a lot of family and where he had inherited his grandfather’s home. It would alleviate us of rent and he’d have a job at a cotton mill and we’d be happy. Well, that was supposed to be how the story turned out, but it didn’t.

It did not take long before problems resurfaced. Arguments over money, over his drinking and over his violent temper. There was little I could do right, in any facet of our home life. I was constantly being reminded that he was the one working and therefore I could not do anything without his approval. My job was cooking and cleaning and maintaining the house as well as being available for sexual use whenever he wanted, regardless if I refused. I was repeatedly raped during those six months I lived there, before I left that Christmas. I did not understand I was being raped until much later, because I did not understand you could be raped when married- that a wife still had the ability to say no.

I was extremely homesick in Alabama. I am an only child and my parents have always tried to support me even though we don’t always agree with one another, or get along. My marrying at 19 because I was pregnant was very difficult for them and so I truly tried to spare them the grief of my failing marriage, even though I would ultimately go back home a total of six times, for sometimes 2-3 months and live with them, with the two children. They knew I was unhappy, that he was controlling and had a temper, but not to the extent of what I was experiencing.

I asked to go home for Christmas because I was homesick and after many arguments, he finally gave his consent and purchased tickets for me and the two girls. I did not plan on not returning, however I had discovered I was pregnant prior to my departure and I was devastated. He…was happy. Many things went through my head, from the non-consensual sex that had me in this predicament to the knowledge that if I had another child, I would never be able to leave him. I didn’t have an education or a job because I had two children under 4ys and a baby would pretty much anchor me to a marriage that I was afraid would kill me. We’d had a fight about something, I can’t even remember, but what I do remember vividly is me, in one of the closets of the bedroom crouched down and praying he would be distracted by something and not hunt me down and then him finding me, yelling at me with a sawed off shot gun in his hand and pressing the barrel to my forehead. I was not going to disobey him, again. So, I got on that plane and while I don’t even remember the trip I remember crying at some point, holding my youngest and pulling the older one close against me and telling them we weren’t going back.

People have told me that I am so brave for leaving but it wasn’t bravery. It was survival. This wasn’t some Hollywood-hatched-plan of escape. It was luck. I believe that sometimes the universe opens a door that you may not understand the meaning of until you are in that moment. Going back home was nothing more than wanting to be with my parents for the holidays but it opened up a window of opportunity that only made itself known to me when I opened up my eyes. I needed to survive because I had two small daughters who depended on me to protect them and care for them. I am often asked if I have any advise for women in domestic violence situations or survivors. Here is what I can offer from my experience.

·       It’s not just physical: I wasn’t aware I was being sexually abused/assaulted, repeatedly until much later. Domestic violence includes: Sexual, Emotional, Psychological, Financial and Social abuse.

·       Boundary Building: When you are in this situation you become so acutely focused on pleasing someone else you forget entirely about you. Where you once may have been able to say no, you are unable to because “No” becomes associated with rebelling and violence. If you cannot learn to create boundaries with people you remain a potential target for abuse.

·       It’s not your fault: The abuser cannot take responsibility for their abuse and so it is pushed onto the victim. This burden is not yours. You were not to blame. It is one of the biggest hurdles because it is one of the first things they do to assume control. “You made me do this” or “If you could just do this right, I wouldn’t have to..” You’re not to blame.

·       Remember happiness: You were once happy before things took a downward turn. Remember what it was like to not be afraid, to be happy, to see yourself smiling, or laughing, and to see your kids smiling. Abuse shatters happiness and leaves you as a shell of your former self. It robs your children of their happiness too. You deserve happiness. Children deserve happiness. Hang on to that hope, don’t let it get away from you and you will eventually get there.

I am not a counselor or therapist. This is only my opinion and perspective from experiencing domestic abuse/violence. If you are in an abusive relationship please call:

In the US: National Domestic Violence Hotline at 1-800-799-7233 (SAFE)

[*Wrote this for The Migraine Mantras published Oct. 5th, 2018]

Thank you for reading:
Please donate ❤
https://www.paypal.com/cgi-bin/webscr?cmd=_s-xclick&hosted_button_id=4MYYJHXFMTGZN

 

How My Assault Has Shaped Me

And Shaped My Mental Health

*WARNING* *POSSIBLE TRIGGER* *WARNING*

I’ve been thinking a lot about my rape. Everything in our news has sort of forced me into thinking about a subject that I tucked away for 30rs. I recently wrote about how I feel my assault has perhaps had a hand in much of my chronic illness, if chronic illness/autoimmune disorders are in part, caused by elevated stress. Today, I want to talk about how I feel my assault shaped me and my mental health. To be clear, I am only talking about my assault here as a teen and not including a four-year marriage that was also violent and abusive and no doubt had an impact on all facets of my health.

It was 1987 and I was 13yrs old. I went to a YMCA day camp in my town. Day camp was the closest thing I got to a “camping” experience. My mother was not the out-doors type and because I was an only child, and probably because she needed some me-time too, I was sent to day camp for a couple of sessions. I was always a very introverted child- an INFJ to the core and I wish I had known that then or had come with an owner’s manual for my parents, because it was very hard. Both my parents are very extroverted and it simply did not carry over to me. They felt that day camp would get me around kids my age and I would blossom from the cocoon of introvert-land. No such luck, but I did love going to camp.

To sum up the hierarchy of the camp you had the camp-goers and staff/counselors and also counselors-in-training (CiT). These were kids that were too old for camp and who were 16-18 years old and who worked they’re under the guidance of counselors and would play with and monitor the camp kids. Please keep in mind that these memories are 30yrs old and from a child’s memories. I have always loved kids. I felt like I was an adult trapped in a child’s body. I don’t know if this was because I was an only child, if it was because for a lot of my childhood I lived in neighborhoods without children and where my companions were senior citizens, or because I just got kids. While I had a few friends my age, when we did age-related activities, when we were all thrown together, I spent a lot of time playing and keeping company with, the younger kids and also with some of these counselors-in-training. Among them, were both boys and girls and at the tender age of thirteen, I both idolized them and wanted them to like me, including the boys. But I was 13 and approaching in Junior High and awkward and didn’t feel very pretty. Until, one of the boy-CiT’s eye landed on me. He payed attention to me and whenever he needed help would recruit me. I felt very special.

My day-camp, though I do think they had a special week that was overnight, was not that kind of camp. My parents were extremely frightened of something happening to their only child and in a day and age of “Adam,” they had a good reason to worry. So I did not get to go to the special overnight week that some of my friends were able to attend, however, we did have day trips where we would go to an area with a lake (and forgive me, as this is a place I have not been back to in 30yrs, so my memory is foggy) and where they had areas for art and crafts and other things, bathrooms and showers for after the lake and places that were out of sight, though you were not allowed to wander off without an adult or CiT. This place is where my assault took place. The boy had me wrapped around his finger and so when he asked me to help him get some stuff for a project later on, I didn’t question it and it didn’t seem odd to me that it was in the are we weren’t allowed to wander to. He was a CiT, which was the equivalent to an adult for me and I was glowing with pride that he liked me and trusted me to help him. It was here, away from the others and in a supply closet that he raped me. I remember the surprise and the fear with a terrible acuity. I remember the way he pulled down my shorts and put his hand over my mouth and told me not to scream. I wouldn’t have dared anyway, the fear had me all but silenced and all I could do was cry. He raped me and told me if I said a word, if I tried to tell anyone, that he would hurt me and my parents. After it was over he brought me to the girl’s bathroom and told me to wash up. He left me there and I did as he said, still feeling the horror. I washed everywhere. So even if I had told, I’d already ruined any possible DNA being found. I was a kid. I was terrified. I don’t know how I made it the rest of the afternoon. Mostly, I don’t even remember. I think I slipped into some rote function and did what I was supposed to and when I got home I pretended not to feel well.

I never told anyone. Not a camp counselor, not anyone.

That up-coming school year was horrible. I have no doubt I drove my parents to the brink. Things get fuzzy for me here. I spent a lot of time in detention and I was not doing well academically either. Everything from my demeanor to my style changed. I was more withdrawn than normal; my favorite color was black and I was always seeking trouble. I was experimenting with boys and not in a healthy way. I had it in my head that I brought this on myself and that I somehow deserved it for flirting with this boy because I wanted him to like me. So, my perception of myself in relation to boys was a thing to be used. At some point my parents sought help for me, taking to me a psychiatrist who apparently at some point had been a priest. I was seeing him because I had begun to not eat. Anorexia and bulimia, for me, was a way in which I could control something within myself because I wasn’t able to control what happened to me. I told this doctor I had been assaulted and this doctor did not believe me. I remember recounting to him in excruciating detail what had happened and he told me that it was an imagining. That my brain had conceived this idea as a way in which I would not have to be culpable for my actions. In other words, I invented this horrible experience because I did not want to be responsible for my bad grades, or my mouth, or constantly doing things wrong in school that landed me in detention. To be fair to this doctor, these are my 30yr memories and it is from the perspective of a child. It may not have been how he intended, but it was how it was perceived. This only made me more combative against my parents and they decided that therapy was not working and we stopped going.

Jump forward to High School, I turned my focus on writing. I wrote poetry and fiction and I spilled my pain onto paper. I also fell into some sports and found a way to release some of the anguish I’d been feeling. My behavior in High School was either way, way up in elation or way down. I cycled fast, and there could be days I was good and days where I shut out the world. I knew something was wrong with me but I did not have the words for it. Sometime in my Sophomore year, I think, I went on a choir trip for a competition in Virginia Beach. This was the first time I’d been allowed to embark on such an excursion, by myself (without parents) and I was excited. Everything went well until the night before we had to leave when we were out on the beach and met some men in the military. We were expressly told to stay away, but I was high on life and daring and I befriended two marines. One of them more so than the other and I invited them up to my room (That I shared with 3 other girls). They showed up and half surprised and half dizzy with excitement that they did come up I let them in. Two men who were probably between 18-21 years old, in a room with four girls around 15. I thought I was in love with the one. He held me the entire night and when morning came, excitement and that rush of love drained faster than I can even describe, leaving me with torment and anguish because we were expected to leave. He promised he would write and I half believed him but knew it was unlikely. I didn’t want to go home and I can’t even put into words how quickly and how devastating my mood plummeted. I couldn’t even register the possible danger I had placed my friends in, as I recall their fear when they showed up at our door and when I let them in.

I believe that my assault had an impact on a developing mind as well as developing emotions. I think that whatever made me predisposed to Bipolar biologically, was set-off by the assault and changed the wiring in my brain. I’m not a doctor or psychologist and I don’t claim to know a lick about the biochemistry of it, I’m just saying how it feels in my own head and body. That the body who raped me when I was barely a teenager most likely altered the course of my mental health. I also believe that this alteration predisposed me to an attraction to men who were abusive. I think it’s naïve to believe that events in our lives have no impact on our brain and body. I think in some ways that it is unfair to lay the entire burden on biology for making us this way. That our brains were simply pre-wired for all of this. Can’t it be both? I believe that my sexual assault, and later on my abusive marriage, were integral in making me who I am today. This includes everything from my personality, my quirks and anxieties and my bipolar. Sure, it’s possible that even if I’d lived a charmed life and never encountered the kind of pain I had, that I would have turned out exactly the same way, but I believe pain changes us. And when it’s all said and done, despite it all, I like how I’ve turned out. My experiences have allowed me to become a writer and to share what happened to me with all of you so that maybe, we all heal a little. I feel truly blessed that I can use my platform to engage with other survivors and other warriors out there. We over-come our pain through unity. We use our powerful voices to change things.

https://lovekarmafood.com/blog/
Please donate ❤
https://www.paypal.com/cgi-bin/webscr?cmd=_s-xclick&hosted_button_id=4MYYJHXFMTGZN